I am also still getting blood out of his nose when I suction him out. He still sounds a little stuffy at times but his lungs sound much better. We have been trying to fit in 3 vest PT sessions every day and a saline or albuterol breathing treatment as needed. He is doing much better but still isn't 100%. We were glad to get out of the house Wednesday night and go to Church Services. It is always nice to see our brothers and sisters in christ and they were so glad to see Ryan feeling better.
Ryan was the sickest he has ever been so far since he was born. He was very close to having to be on the ventilator. He was put on a machine called a heliox that had heated humidity. He was on 6 liters and it really helped break up all of the congestion that he had. They also told me that when Ryan gets to where he can't cough well he will have to be put on a machine called an In-Exsufflator or CoughAssist macine.
|This is what the machine looked like that Ryan was on. It is called a respiratory humidifier.|
|This is the In-Exsufflator or CoughAssist machine|
We are so glad he is doing better. Another strange but good thing is that Ryan hasn't had NOT ONE seizure in over a week. We are glad he is getting a break but hate it has to be when he is sick.
Ryan also received his feeder seat tray and base but not the seat. His care coordinator (I really have a hard time calling her that because she doesn't really get his things in a timely manner...but whatever.) thought the seat was ordered but it wasn't. (Insert angry Mamma) She called me yesterday and told me that she ordered it and who knows when it will get here. I am NOT happy about this at all. Who would order a seat tray and base with NO SEAT!?!? But anyway....I am just trying to move on from this and be patient because my anger will not help the situation and will not make the seat get here any faster. We are having some positional problems with Ryan right now with only a bean bag for him to lay on. His wheelchair is not accomodating him properly and we have no other way of sitting him up other than putting him on the couch and that is not safe unless you are sitting right there with him incase he slides off or slumps over sideways. We are going to UVA on the 14th (Joe and I) to get his wheelchair worked on. They ordered him new components for it and they are also making it bigger for him (it has 3 size settings on it). That will be a long day!
Well I guess that is all for now.